COLE'S  STORY

MY HUSBAND WHOM EVERYONE KNOWS AS COLE HAS BATTLED LYME DISEASE FOR
OVER 30 YRS. HE HAS CARDIAC ISSUES- PACEMAKER-- LIFE PORT FOR IV THERAPY
MUSCLE PAIN -- MUSCLE WEAKNESS INABILITY TO STAND / WALK FOR LONGER
THAN FEW MINUTES AT A TIME -- JOINT PAIN --   SLEEP DISORDERS --EXTREME PAIN AND FATIGUE TO THE POINT

THAT MANY DAYS HE IS UNABLE TO GET OUT OF BED -- THIS DISEASE HAS TAKEN MUCH FROM HIM ...

OUR HOPE IS THAT HIS STORY CAN HELP OTHERS BATTLING THIS VICIOUS DISEASE -- HELP OTHERS TO UNDERSTAND THIS DISEASE
AND BE VIGILANT FOR THEMSELVES AND THEIR FAMILIES--

THAT HIS STORY WILL HELP THE MEDICAL COMMUNITY TO LISTEN AND LEARN ABOUT LYME BECAUSE IT IS A MATTER OF LIFE AND DEATH--

HE WAS BITTEN IN HIS YOUTH AND BEGAN EXPERIENCING A MYRAID OF
SYMPTOMS -THAT CAUSED HIS PARENTS TO SEEK THE HELP OF THE FAMILY DOCTOR
WHO ADVISED HIM TO BEGIN SEEING AN ALLERGIST-- WHICH BEGAN THE LONG ROAD
OF TREATMENT OF SYMPTOMS BUT NEVER THE ROOT/CAUSE OF THE ILLNESS
MY HUSBAND WAS FOUND TO BE "ALLERGIC" TO THE ALLERGY SHOTS -- NOT AN
UNUSUAL OCCURANCE IN THE LYME POPULATION -- BUT HIS SYMPTOMS PROGRESSED AND

BECAME MORE DEBILITATING AS TIME WENT ON

-- AS A YOUNG MAN HE WAS ABLE TO JUST "BULL" HIS WAY THRU THE DAY --THINKING EVERYONE MUST
FEEL LIKE HE DOES-- HE KNEW NO DIFFERENT-- UNFORTUNATELY TRUTH BE TOLD
MANY MANY PEOPLE ARE AND HAVE BEEN EXPERIENCING THESE SAME SYMPTOMS
MOST OFTEN WITH THE SAME MEDICAL RESPONSES -- NUMEROUS INACCURATE
DIAGNOSIS THAT OVERLOOK THE REAL CULPRIT--LYME-- ALLOWING THE DISEASE
TO PROGRESS TO THE POINT THAT IT MIMICS SO MANY OTHER CONDITIONS --MUCH EASIER TO ADDRESS....

THUS  THE MEDICAL  COMMUNITY  TREATS THE SYMPTOMS  NOT THE ACTUAL

CAUSE OF THE PROBLEM-- THE DISEASE ITSELF

HE WAS ABLE TO PRESENT THE "RASH" AT NINETEEN YEARS OF AGE TO A MD --
THAT DISMISSED IT AS A " SOIL VIRUS" -ORIGIN UNKNOWN-- AGAIN THE MEDICAL
COMMUNITY NOT ABLE/WILLING TO DEAL WITH THE IMPLICATIONS OF LYME..
CERTAIN THAT WAS NOT THE FIRST INFECTION AND EQUALLY SURE IT WAS NOT THE
LAST-- WE WERE ALL IGNORANT OF THE IMPACT THAT A "TICK-BITE' CAN HAVE ON
LIFE

MANY YEARS AND MANY MORE DIAGNOSIS LATER -- ALL OF WHICH ADDRESSED JUST
THE VARIOUS COMBINATIONS OF SYMPTOMS-- RESTLESS LEG- ASTHMA--EXTREME CHRONIC FATIGUE--

JOINT PAIN--MIGRATORY PAIN -- SLEEP DISORDERS -- MUSCLE WEAKNESS/ PAIN --CONSTANT CHRONIC DEBILITATING  PAIN --

DEPRESSION -- HIGH ANXIETY -- HEART BLOCK-- DYSAUTONOMIA -- FIBROMYALGIA/ARTHRITIS--JUST TO NAME  A FEW ---
THIS ALLOWED THE LYME BACTERIA AND ITS CO-INFECTIONS TO GAIN SUCH A MAJOR HOLD ON HIS BODY --

THAT WHEN HE WAS FINALLY DIAGNOSED -- ( THROUGH THE GRACE OF GOD )

-- AND A LYME LITERATE PHYSICIAN DR LENTZ --WE FOUND THAT IT IS NOT A QUICK AND EASY FIX--

HAD HE BEEN PROPERLY DIAGNOSED MANY YEARS AGO-- THE OUTCOME AND HIS CURRENT CONDITION WOULD BE MUCH BETTER ---

SO WE ARE IN THE FIGHT AGAINST LYME DISEASE FOR EVERYONE --EARLY DIAGNOSIS AND PROPER AGGRESSIVE TREATMENT IS THE ANSWER--
AND THE DIFFERENCE BETWEEN A LIFETIME OF  DEVASTATING CHRONIC PAIN -PARALYZING FATIGUE- AND EXTREME DISCOMFORT--
TO HOPE AND HELP AND THE BODY'S ABILITY TO HEAL

ON AN ANGEL'S WING

MUSIC IS A GREAT HEALER--
MUSIC-- IT HAS ALWAYS BEEN A PART OF WHO MY HUSBAND IS-- HIS ROOTS ARE IN ROCK AND BLUES -- ABLE TO PLAY MANY INSTRUMENTS BUT HIS FIRST LOVE IS THE PIANO FOLLOWED VERY CLOSELY BY HIS LOVE OF THE GUITAR-- AND HE HAS
A VOICE THAT MAKES YOU MELT--
HE HAS THROUGH HIS LIFE BEEN FORTUNATE TO
EXPERIENCE FIRST HAND GREAT CONCERTS AND MUSIC CELEBRATIONS SOME OF WHICH HE HAS PARTICIPATED IN BUT HIS SICKNESS HAS PREVENTED HIM FROM BEING ABLE TO PURSUE AND USE THE GIFT OF MUSIC THAT HE HAS BEEN GIVEN AS HE WOULD HAVE LIKED --HAD HE NOT HAD SUCH DEBILITATING ILLNESS WE KNOW THINGS WOULD HAVE BEEN MUCH DIFFERENT-- BUT HE KNOWS THAT GOD HAS SOMETHING ELSE IN STORE FOR HIM-- SO I HAVE PUT TOGETHER SOME OF HIS BEAUTIFUL PIANO MUSIC -- ALL ORIGINAL- ALL STRAIGHT FORM THE HEART--
SPRITFILLED MUSIC -- MUSIC FOR PEACE AND TRANQUILITY IN THIS BUSY, CRAZY
SOMETIMES VERY PAINFUL WORLD - WE ALL LIVE IN--
MUSIC THAT WE KNOW CAN MAKE A DIFFERENCE -- HELP US IN THE FIGHT AGAINST LYME DISEASE FOR EVERYONE

 WE  WILL NEVER GIVE UP 
 WE  WILL NEVER  GIVE IN